"Diego”, he is our only son and pride.
Diego: born on 08-29-2004: he is our only child , pride and joy.

We are Karin and Mark and we have opened this website in order to achieve – and give- more openness and clearness in the vast and in-penetrable jungle of medical information.

Why is that…?
Well, Diego has a very rare and life threatening disorder in the larynx, of which he has been successfully operated on in November of 2005 (at the age of 14 months). However… that’s what we think. The operation took place all right, whether or not it has been successful we don’t know.

The disorder is known as “ INTERARYTENOID CLEFT” or also “ LARYNGEAL CLEFT Type 1” , or” LT Cleft type 1”, or just “Cleft in the Larynx”. That leaves you as Mum and Dad of a one-year old with a sewn-up cleft in his little throat.

What to do??
After the operation we learned that not only the disorder is very rare, but also rare are knowledge and documentation on this subject. Very frustrating because that makes is in-credibly difficult to foreseeing a “medical” future for our son. In order to do so , we try- with this website – to exchange information and knowledge with companions in distress.

How are we going to do this…..?
On the website you will find some info-points which will be useful to obtain information, but also to exchange tips, like:

• Useful links to other websites with related information and
• Documentation about the disorder and related subjects.
• Blog posts
• Contact us via our contact form

Whenever you have any info at all, then we would enjoy receiving it and we would put it on this website. It goes without saying, that we are no medics, nor do we pretend to be! But in this way we do hope to be a meeting place for YOU parents with similar problems and questions as we have.

Best regards:

Karin, Diego and Mark